tag:blogger.com,1999:blog-60180093325949141532012-01-02T07:03:55.158-08:00The official blog of Chromosome 22 Central. For anyone who is affected by issues involving chromosome 22 - including the genetic disorders of 22q11 deletion, Emanuel Syndrome, trisomy 22, cat eye syndrome, etc. We are all about everything "22"!Stephanie St-Pierrehttp://www.blogger.com/profile/14783967753296721673noreply@blogger.comBlogger121100tag:blogger.com,1999:blog-6018009332594914153.post-26923368078718976882012-01-02T07:03:00.000-08:002012-01-02T07:03:55.169-08:00<iframe width="480" height="270" src="http://www.youtube.com/embed/SPDbBUGcHVE?fs=1" frameborder="0" allowFullScreen=""></iframe><div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/6018009332594914153-2692336807871897688?l=c22c.blogspot.com' alt='' /></div>Stephanie St-Pierrehttp://www.blogger.com/profile/14783967753296721673noreply@blogger.com0tag:blogger.com,1999:blog-6018009332594914153.post-54672969097324596502011-12-21T17:41:00.000-08:002011-12-21T17:41:48.104-08:00<a href="http://www.wistv.com/story/16373611/patty-packs-look-light-up-the-lives-of-hospital-parents#.TvKK2LgseME.blogger">&quot;Patty Packs&quot; look light up the lives of hospital parents - WIS News 10 - Columbia, South Carolina |</a><div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/6018009332594914153-5467296909732459650?l=c22c.blogspot.com' alt='' /></div>Stephanie St-Pierrehttp://www.blogger.com/profile/14783967753296721673noreply@blogger.com0tag:blogger.com,1999:blog-6018009332594914153.post-45878168025498420932011-12-21T17:39:00.000-08:002011-12-21T17:39:59.985-08:00<a href="http://www.northamptonchron.co.uk/news/health/fund_raisers_help_give_toddler_who_endured_major_heart_surgery_special_bed_1_3351326#.TvKKSzWh_Wg.blogger">Fund-raisers help give toddler who endured major heart surgery special bed - Health - Northampton Chronicle &amp; Echo</a><div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/6018009332594914153-4587816802549842093?l=c22c.blogspot.com' alt='' /></div>Stephanie St-Pierrehttp://www.blogger.com/profile/14783967753296721673noreply@blogger.com0tag:blogger.com,1999:blog-6018009332594914153.post-7895715956997703702011-11-30T18:33:00.000-08:002011-11-30T18:33:52.478-08:00<a href="http://www.blackpoolgazette.co.uk/lifestyle/supplements/eve/big_plans_to_help_gracie_1_4014472#.TtbnRcXzc50.blogger">BIG PLANS TO HELP GRACIE - Eve - Blackpool Gazette</a><br /><br />Gracie has 22q11 microduplication<div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/6018009332594914153-789571595699770370?l=c22c.blogspot.com' alt='' /></div>Stephanie St-Pierrehttp://www.blogger.com/profile/14783967753296721673noreply@blogger.com0tag:blogger.com,1999:blog-6018009332594914153.post-119979265313464292011-11-27T08:41:00.001-08:002011-11-27T08:41:31.639-08:00<object id="flashObj" width="486" height="412" classid="clsid:D27CDB6E-AE6D-11cf-96B8-444553540000" codebase="http://download.macromedia.com/pub/shockwave/cabs/flash/swflash.cab#version=9,0,47,0"><param name="movie" value="http://c.brightcove.com/services/viewer/federated_f9?isVid=1" /><param name="bgcolor" value="#FFFFFF" /><param name="flashVars" value="videoId=1293854685001&playerID=34762727001&playerKey=AQ~~,AAAAB_0P-vE~,oPpEPJJj0Ohvv2-IX8O4W3nfCuRj9a4y&domain=embed&dynamicStreaming=true" /><param name="base" value="http://admin.brightcove.com" /><param name="seamlesstabbing" value="false" /><param name="allowFullScreen" value="true" /><param name="swLiveConnect" value="true" /><param name="allowScriptAccess" value="always" /><embed src="http://c.brightcove.com/services/viewer/federated_f9?isVid=1" bgcolor="#FFFFFF" flashVars="videoId=1293854685001&playerID=34762727001&playerKey=AQ~~,AAAAB_0P-vE~,oPpEPJJj0Ohvv2-IX8O4W3nfCuRj9a4y&domain=embed&dynamicStreaming=true" base="http://admin.brightcove.com" name="flashObj" width="486" height="412" seamlesstabbing="false" type="application/x-shockwave-flash" allowFullScreen="true" swLiveConnect="true" allowScriptAccess="always" pluginspage="http://www.macromedia.com/shockwave/download/index.cgi?P1_Prod_Version=ShockwaveFlash"></embed></object><div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/6018009332594914153-11997926531346429?l=c22c.blogspot.com' alt='' /></div>Stephanie St-Pierrehttp://www.blogger.com/profile/14783967753296721673noreply@blogger.com0tag:blogger.com,1999:blog-6018009332594914153.post-4055409904899853932011-08-27T12:47:00.000-07:002011-08-27T12:48:49.505-07:00Are you new to the C22C community? If you aren't subscribed to our newsletter yet, you should be! <br /> <br /><a href="http://health.groups.yahoo.com/group/c22cnews">Sign up here</a>! Don't miss out. Every three months we send out a colour PDF newsletter with stories, photos, events and news of interest to the C22C Community!<div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/6018009332594914153-405540990489985393?l=c22c.blogspot.com' alt='' /></div>Stephanie St-Pierrehttp://www.blogger.com/profile/14783967753296721673noreply@blogger.com0tag:blogger.com,1999:blog-6018009332594914153.post-65409305816037787212011-08-27T12:11:00.001-07:002011-08-27T12:11:46.626-07:00<object width = "512" height = "328" > <param name = "movie" value = "http://www-tc.pbs.org/video/media/swf/PBSPlayer.swf" > </param><param name="flashvars" value="video=2073485285&player=viral&end=0" /> <param name="allowFullScreen" value="true"></param > <param name = "allowscriptaccess" value = "always" > </param><param name="wmode" value="transparent"></param ><embed src="http://www-tc.pbs.org/video/media/swf/PBSPlayer.swf" flashvars="video=2073485285&player=viral&end=0" type="application/x-shockwave-flash" allowscriptaccess="always" wmode="transparent" allowfullscreen="true" width="512" height="328" bgcolor="#000000"></embed></object><p style="font-size:11px; font-family:Arial, Helvetica, sans-serif; color: #808080; margin-top: 5px; background: transparent; text-align: center; width: 512px;">Watch the <a style="text-decoration:none !important; font-weight:normal !important; height: 13px; color:#4eb2fe !important;" href="http://video.wedu.org/video/2073485285" target="_blank">full episode</a>. See more <a style="text-decoration:none !important; font-weight:normal !important; height: 13px; color:#4eb2fe !important;" href="http://www.wedu.org/agcj" target="_blank">A Gulf Coast Journal.</a></p><div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/6018009332594914153-6540930581603778721?l=c22c.blogspot.com' alt='' /></div>Stephanie St-Pierrehttp://www.blogger.com/profile/14783967753296721673noreply@blogger.com0tag:blogger.com,1999:blog-6018009332594914153.post-81664854768027902892011-08-27T11:29:00.001-07:002011-08-27T11:30:14.777-07:00Did you know we have an <a href="http://www.cafepress.ca/C22C">on-line store through Cafepress</a>, where you can get C22C shirts and more? Check us out! Never too early to start stocking up for Christmas, or treat yourself. Help us spread awareness and raise money at the same time. We count on your support!<div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/6018009332594914153-8166485476802790289?l=c22c.blogspot.com' alt='' /></div>Stephanie St-Pierrehttp://www.blogger.com/profile/14783967753296721673noreply@blogger.com0tag:blogger.com,1999:blog-6018009332594914153.post-11143756664387705592011-08-27T11:19:00.001-07:002011-08-27T11:21:32.255-07:00If you haven't already heard, the Dempster Family Foundation is doing a really awesome awareness tour in a 39 foot RV/bus - what an incredible job! <br /> <br /><a href="http://dempsterfamilyfoundation.org/press_room/2011-22q-awareness-tour-kicks-off-this-week/">Check out their webpage for details.</a><div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/6018009332594914153-1114375666438770559?l=c22c.blogspot.com' alt='' /></div>Stephanie St-Pierrehttp://www.blogger.com/profile/14783967753296721673noreply@blogger.com0tag:blogger.com,1999:blog-6018009332594914153.post-8426991630239130822011-08-27T09:01:00.001-07:002011-08-27T09:02:10.485-07:00I love stories like this, hope you had fun honey! <br /> <br /><a href="http://www.cbs19.tv/story/15332695/charity-helps-lindale-girls-disney-wish-come-true#.TlZ76sPw7_k.facebook">See the story online.</a><div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/6018009332594914153-842699163023913082?l=c22c.blogspot.com' alt='' /></div>Stephanie St-Pierrehttp://www.blogger.com/profile/14783967753296721673noreply@blogger.com0tag:blogger.com,1999:blog-6018009332594914153.post-84987099342924151922011-08-27T08:58:00.000-07:002011-08-27T09:00:24.272-07:00Check out the <a href="http://yourhub.denverpost.com/def-section/dozens-climb-mt-bierstadt-help-kids-developmental-issues/ItaNVIelbaaM1p8Lu6roCL-ugc">Denverpost.com article</a> to see what Colorado families are doing to raise awareness and funds for 22q11 deletion syndrome!<div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/6018009332594914153-8498709934292415192?l=c22c.blogspot.com' alt='' /></div>Stephanie St-Pierrehttp://www.blogger.com/profile/14783967753296721673noreply@blogger.com0tag:blogger.com,1999:blog-6018009332594914153.post-60155953249694867542011-07-28T16:20:00.000-07:002011-08-27T08:58:14.487-07:00Do you blog about your family? We'd love to know! Tell us where we can find you! I will start: <br /> <br />I write about my daughter Maia, who is 16 and has Emanuel Syndrome at <a href="http://mybravemaia.blogspot.com">mybravemaia.blogspot.com</a>. <br /> <br /> <br />Stephanie<div class="blogger-post-footer"><img width='1' height='1' src='https://blogger.googleusercontent.com/tracker/6018009332594914153-6015595324969486754?l=c22c.blogspot.com' alt='' /></div>Stephanie St-Pierrehttp://www.blogger.com/profile/14783967753296721673noreply@blogger.com0