C22C Family Reunion

Please see details at our website, www.c22c.org/niagara09.htm

To be held July 24-26th, Niagara Falls, Ontario Canada.

Email Stephanie with any questions, steph.stpierre@gmail.com

C22C's next get together..

C22C is going to be planning a get together for this summer in Niagara Falls, Ontario. We have had several past events (see our website, www.c22c.org/events.htm and I can say that people benefit so much from coming together with other families just like theirs. I am so excited!

In order to help our group plan effectively - we need to know how many people we can expect....we haven't had a conference in 4 years, and our group has increased significantly since then! Please help us by filling in the poll on the side, if you think you may plan to come.

Our conferences are not about speakers and workshops, rather, they are strictly a weekend designed for networking and fun! More details will come, but you can expect a couple of social evenings and day events designed to provide opportunities for families to meet each other and share stories.

Please feel free to email steph.stpierre@gmail.com for more details. We hope to see you there!

Do you have experience using medication on your child?

Recently, a member asked this question: is it normal/okay/socially acceptable to drug your kid... even when you don't want to and think it sound horrifying and don't know what else to do/have tried everything else?!?

This is something I faced with my own 13 year old daughter after being at a loss to control her serious behaviours. We first tried Effexor, then Risperdal, and then Prozac worked for about 9 months, only to have it no longer be effective. We are currently looking into further options.

We'd love to hear your stories, good or bad - or just your opinion in general.

If you could go back....

Someone recently asked one of our members, if you could go back to the beginning of your children's birth/diagnosis - early years, what would you do differently? This question is obviously for families with older kids. Some suggestion - that they would focus less on therapies...or be more assertive. Share your thoughts!

Steph

Tell us about experiences with respite care

For those families that require respite care for their children, I would love to hear your experiences. Do you receive care through a variety of agencies? Do you have trouble access resite or maintaining workers for your child? Tell me about any challenges you feel are issues in obtaining respite care. I am involved in a planning committee for respite care in my daughter's area, and I would love to hear what other families use, what works for them, what doesn't, what they wish they could change....

My own daughter obtains respite care through 3 differents modes of service in Ontario. Community Care Access Centre, a local respite agency, and a government funding program. What support do you recieve?

Stephanie

Suggest a topic for discussion!

What do you want to hear about from other parents?

We want to hear something positive...

So tell us what your child did recently that made you smile...