Saturday, March 3, 2012
Harper's Playground to be built this summer!
Way to go for Harper Goldberg!
Harper has Emanuel Syndrome, and her family has fund raised enough to build an amazing accessible playground in Oregon!
Harper has Emanuel Syndrome, and her family has fund raised enough to build an amazing accessible playground in Oregon!
Wednesday, February 29, 2012
Rare Disease Day is February 29, 2012
RI Awareness Event Live Feed
NORD will be live streaming the Rhode Island Rare Disease Foundation Awareness event to take place from 6-8pm on February 29th in Cranston, RI. The program will include remarks by Patty Weltin, director of the RIRDF, Tricky Britches will play “A Rare One”, and photographer Rick Guidotti will present on his project, Positive Exposure.
Livestream this RDD Event (live: Feb 29th, 6-8 pm) on your own website, blog, or other webpage. Please feel free to share this video player on your own site or blog by utilizing the share button at the bottom of the video player or share the link via Twitter and Facebook!
Live stream by Ustream
NORD will be live streaming the Rhode Island Rare Disease Foundation Awareness event to take place from 6-8pm on February 29th in Cranston, RI. The program will include remarks by Patty Weltin, director of the RIRDF, Tricky Britches will play “A Rare One”, and photographer Rick Guidotti will present on his project, Positive Exposure.
Livestream this RDD Event (live: Feb 29th, 6-8 pm) on your own website, blog, or other webpage. Please feel free to share this video player on your own site or blog by utilizing the share button at the bottom of the video player or share the link via Twitter and Facebook!
Live stream by Ustream
Monday, January 2, 2012
Wednesday, December 21, 2011
Subscribe to:
Posts (Atom)